Working alongside local people with long COVID, organisations in Lincolnshire came together to develop the long COVID information hub, in particular health organisations, Lincolnshire Community Health Services NHS Trust (LCHS) Lincolnshire Connect to Support and voluntary sector organisations.
The hub provides guidance and information on long COVID and gives links, documents and videos to help people with symptom management and signpost them to further help.
Office for National Statistics data* says the overall prevalence of long COVID remains high, 1.6 million people in England are estimated to have self-reported long covid symptoms lasting longer than 4 weeks with 1.2 million reporting symptoms lasting longer than 12 weeks.
The most common symptoms of long COVID are extreme tiredness (fatigue), shortness of breath, loss of smell and muscle aches.**
The charity Every-One brought people with experience of long COVID together with health organisations to identify what could help them, their families, friends, schools and employers with their recovery journey and the hub was developed after this feedback.
Vicky Thomson, Chief Executive Officer at Every-One said: “It became apparent whilst working alongside people with long COVID that it wasn’t just themselves who needed access to support and resources. It was important to develop a digital hub that people’s families, carers, employers and schools could access too, so the person was fully supported in all aspects of their lives.
“Long COVID affects people in many different ways, so we needed a multifaceted resource.”
The long COVID information hub includes videos from people who have experienced long COVID, sharing their stories, as well as pages on financial support and help at work. There are sections for children and young people, activities to help with symptoms and contacts for further support and advice.
The hub, funded through an NHS Charities Together grant is hosted on a Lincolnshire Connect to Support webpage.
Paula Duckworth, LCHS lead said: “The long COVID information hub is a significant achievement, providing sources of information requested by those with lived experience of long COVID.
“Thanks to Lincolnshire Connect to Support for hosting the hub.”
Other work to support people with long COVID includes providing peer support and ensuring physical activity providers are aware of the condition and how this affects people. The organisations committed to helping people with long COVID will continue to listen and share ideas and suggestions for further improvements.
If you live in Lincolnshire and have experience of long COVID and want to get involved in sharing your experience, contact firstname.lastname@example.org
* Source Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK – Office for National Statistics (ons.gov.uk)
** Source https://www.nhs.uk/conditions/coronavirus-covid-19/long-term-effects-of-coronavirus-long-covid/
To view the news release on the LCHS website please click here
Here is the link to the Long Covid Information Hub: https://lincolnshire.connecttosupport.org/long-covid-information-hub/
Please see below for more information on the organisations involved:
NHS Charities Together are a national independent charity caring for the NHS. They work with NHS Charities across the UK, to help the NHS go further for staff and patients. To find out more please see their website NHS Charities Together
Lincolnshire Connect to Support is an online information and advice library and community directory for people in Lincolnshire. It has information about local groups, activities and services within the community. See their website for further details Lincolnshire Connect to Support
Every-One is a Lincolnshire enterprise and registered charity, that aims to work inclusively with everyone, to ensure that everyone individual, is at the centre of their own wellbeing. To find out more please see their website Every-One
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